Okay the splenectomy is done after what has been a year deciding whether I qualified for a stem cell transplant and plenty of blood transfusions. I had undergone plenty of procedures to check on my body to see if there was anything else wrong, had pneumonia a few times, and then in the end it was decided that I should get the spleen out.
Up to that time I was not taking any medication. It was basically let's get the stem cell transplant done to start all over. Anyway they still couldn't figure out what was causing my hemoglobin to drop.
The two liver biopsies showed conclusively that on my liver there was some damage so on my follow up visit with the hematologist I was prescribed Methotrexate. This was to get rid of the Large Granular Leukemia they noticed. I was to take this chemo pill once a week and the other six days take a tiny Folic acid pill. Apparently we lose a lot of Folic acid when we go through anything related to chemotherapy and it is essential.
As soon as I was discharged figuring everything was under control I planned for a two week vacation out to the West Coast. We would be staying with friends for nearly a week in Victoria BC where we could show our boys where we got married and lived etc. After Victoria we would then go to the Rockies visiting Jasper especially because I spent some time there working as a waiter.
It is funny to note but shortly after the operation we had an appointment with the surgeon to have him check me out and remove the staples. He removed most of them but then said there were four he did not want to take out. So he asked Soley if she would mind to save us a trip pulling them out herself. It was a staple remover that was specially designed for such a task. She said yes she would do it and so he gave us the stapler and we said goodbye. Four days later she removed the last four staples.
The only problem was that after about a month my improved blood results took a turn for the worst and with the hemoglobin hovering up and down it seemed every couple of weeks I had to get another blood transfusion. So that was disappointing. It wasn't over as it appeared at least to me the spleen had been left there too long and now the pains of neglect were taking over. My bone marrow appeared to not be up to full force. My liver was not great either. So I was just hoping that time would straighten this out.
Before our trip out west the hematologist advised me to get a top up with a blood transfusion just before we departed. Then she brought up the stem cell transplant again. I replied that I just had my spleen out to which she replied I could still get one with or without the spleen.
I shook my head. This was becoming her dream now not mine. I was psyched up for it the first time around but again I thought. It had definitely lost it's shine by this time.
Off we flew out West. Had a great time and spared no expense. Seeing our good friends again after 18 years was fabulous and we had planned our trip perfectly. I was taking the chemo pill and Folic acid.
The only thing I couldn't do was walk fast enough to keep up with the others. We skipped breakfast to go straight to the airport on departure day
and my only episode was while in line I started to get queasy and funny looking. The security saw that and allowed me to jump the queue and find a seat in the terminal. After a couple of hours nap I was better again but the skipping of breakfast was not a good move.
When we got back I went in for blood work and my hemoglobin was down but only to 72. So I was not surprised it was down but it was not tragic. When people have lower hemoglobin they say the body fights through it and manages to get use to it. Well after climbing hills and driving a lot of kilometers I guess my body was getting used to it.
I got the transfusion again then I got a call from the hematologist...
The Wife Enjoying Jasper
No comments:
Post a Comment